This is a perfect example of our roller coaster, but I wanted to share another blessing and victory we had with Andrew -- on his echocardiogram (heart ultrasound) while it continues to show good functionality, his PDA has decreased in size, from very large to moderate!! Patent Ductus Arteriosus are valves in prenatal infants which bypass the lungs which usually close shortly after birth, but preemies' often stay open longer. This is a big deal, because if it doesn't close on its own, he will need heart surgery, and he can't have surgery when he has all of these infections. The PDA has been giving us a lot of secondary complications, so the fact that it is starting to close a little bit on its own is VERY encouraging. Hooray for Andrew!! You keep it up, little guy!
Another thing of relatively good news is that Ethan's infection is probably not too bad, as infections go -- it is a respiratory infection, but it hasn't developed into pneumonia. And hopefully since they jumped on it so promptly, it won't get much worse. Although all infections in preemies are life-threatening, it looks like this one is not as bad as most. They haven't identified the exact strain yet, but it is bacterial, not fungal -- so no aspergillus for him yet. He also continues to wean on the ventilator, and soon will be able to come off it, although with his respiratory infection we're going to have to be very careful.
So far nothing has grown out of either boys' lumbar punctures or blood cultures, so we are crossing our fingers that continues. It has only been 2 days out of 14, but any day that we don't get bad news in that department is a very good day :).
Thank you again for your prayers during our scares on Sunday, and transport on Tuesday. Emily and I can not express our gratitude enough for them. So many people are asking how they can help -- I hope you all know that I am completely honest and sincere when I say the very best and most important thing that anyone can do for us is remember our two little fighters in their prayers. The fact that Andrew has come so close to death's door twice, and opened it once, but still turns the corner and comes back to us is miraculous to me, and I feel due entirely to our friends' and families' faith and prayers. So thank you again.
6 comments:
I cry at every post! So happy they had a good day! Love you all!
I second the cry comment from Karen.
You and Emily are such strong people! Your little guys are so blessed to have you as mommy and daddy.
You and your sweet family are in my prayers.
~Lindsay Bennett
Stephen, Emily, Andrew and Ethan,
You have not heard from your Aunt Deana for a couple of reasons.
#1 As a nurse, this is what I did after I graduated from the UofU was work intensive care at Primary Children's. I have taken care of may children like your Ethan and Andrew. So I wanted to wait and see how they were doing.
#2 I didn't know you had a blog.
Now, I must say, I have had all of you in my prayers. The boys are far from being out of the woods. However, I have great faith in God and His power to help us during this difficult time. As you know, God is beside you and walking you through this experience. I pray that they may survive and live normal healthy lives. I pray that you, Stephen and Emily, may accept whatever happens--that you will be strenghtened by it and become better parents because of it.
Lots of Love,
Aunt Deana
Emily, This is Lisa Nelson( patricks mom) I just want you to know i am praying for your sweet babies. i cried when i read this I cried. I went through this roller coaster with patrick. They thought he had necrosis and we had to stop all his feedings.I had a talk with patrick and he is going to pray for your sweet babies. He has been very concerned about you and the babies. I will keep you your husband and your sweet warriors in my prayers. LOVE LISA AND PATRICK NELSON
mandmnelson@msn.com
Steve and Emily
We think about you guys all the time and are keeping you and your sweet little boys in our prayers.
Missy and Dan McKinlay
Reading these posts has made me cry several times. We will continue to pray for your entire family. Hurray for all the little miracles and the chance to have these sweet boys. I'm so glad you were able to hold Ethan. We hope you continue to have many more miracles!
Mike and Heather Wilson
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